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Tuberous Sclerosis Alliance
Latest from Tuberous Sclerosis Alliance
Martina Bebin, MD, MPA: Bridging The Gap to Prevention With Epidiolex
October 09, 2020
Video
The professor of neurology and pediatrics at the University of Alabama at Birmingham Epilepsy Center provided insight on the importance of treating TSC early, and how far away we are from prevention.
Tuberous Sclerosis Complex Takes Major Step With Epidiolex Approval
September 26, 2020
Article
Martina Bebin, MD, professor of neurology and pediatrics at the University of Alabama at Birmingham Epilepsy Center, detailed the importance of cannabidiol for treatment of TSC.
Martina Bebin, MD, MPA: Epidiolex and the Novelty of CBD in TSC
September 23, 2020
Video
The professor of neurology and pediatrics at University of Alabama at Birmingham Epilepsy Center discussed the FDA approval of epidiolex for patients with tuberous sclerosis complex.
TS Alliance Partners With Seizure Tracker to Promote Data Sharing
June 23, 2020
Article
The partnership will combine 2 databases with robust historical data in hopes of empowering both research and physician communities and ultimately improving clinical care for patients with tuberous sclerosis complex.
Coronavirus and Tuberous Sclerosis Complex: What You Need to Know
March 15, 2020
Article
The Tuberous Sclerosis Alliance (TS Alliance) have prepared an FAQ to address concerns from the tuberous sclerosis complex (TSC) community regarding the COVID-19 outbreak.
Sabril Label Expanded for Patients 2 to 10 Years Old
February 21, 2020
Article
The previously approved therapy is now indicated for treatment in pediatric patients age 2 to 10.