Transition to Adult Care Is Inconsistent for Patients With Dravet Syndrome, Survey Suggests
December 4th 2022A survey conducted in conjunction with the Dravet Syndrome Foundation suggests that many patients with DS do not undergo the transition of care from pediatric to adult neurology providers, with caregivers of those who did expressing some concerns about the process.
Rare Disease Day: Updates on Rare Neurological Diseases
February 28th 2022In recognition of Rare Disease Day, the NeurologyLive® team offered an extensive update on the state of care and treatment for a wide range of rare neurological diseases, including Kleine-Levin syndrome, amyotrophic lateral sclerosis, cerebral palsy, Lennox-Gastaut syndrome, and more.
Shifting to a Holistic Approach to Treat Developmental Epileptic Encephalopathies
December 13th 2021The medical director of the Epilepsy program at the University of Toronto discussed her presentation at AES 2021 regarding the need to change how clinicians view and treat patients with developmental epileptic encephalopathies.
Vaccination and Seizure Risk in Dravet Syndrome: Veronica Hood, PhD, MS
December 8th 2021The scientific director at the Dravet Syndrome Foundation commented on the concern associated with vaccination in this patient population, noting that investigators have not observed an exacerbated risk profile with the COVID-19 vaccines. [WATCH TIME: 2 minutes]
Educating Children, Adolescents With Epilepsy About Diets: Robyn Blackford, RD, LDN
October 8th 2021The registered dietician at Ann & Robert H. Lurie Children’s Hospital of Chicago provided insight on the importance of educating youths with epilepsy on diets, especially in the transition stages of care. [WATCH TIME: 2 minutes]
Understanding Different Dietary Approaches for Epilepsy: Robyn Blackford, RD, LDN
September 30th 2021The registered dietician at Ann & Robert H. Lurie Children’s Hospital of Chicago discussed the variety of diets available to patients with epilepsy and how they differ from one another. [WATCH TIME: 3 minutes]