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Videos

The chief scientific officer at Athira talked about the potential of hepatocyte growth factor compounds in promoting neurotrophic signaling and providing broad neuroprotection across neurodegenerative diseases. [WATCH TIME: 6 minutes]

Promise of Neuroprotection in Neurodegenerative Diseases Through HGF Compounds: Kevin Church, PhD

The chair of neurology at Massachusetts General Hospital talked about results from the phase 2b PARADIGM trial assessing PrimeC, an ALS combination agent that consists of ciprofloxacin and celecoxib. [WATCH TIME: 4 minutes]

Examining Promising Phase 2b PARADIGM Findings of ALS Agent PrimeC: Merit Cudkowicz, MD, MSc

Articles

After 2 years of treatment, EDG-5506, otherwise known as sevasemten, was well-tolerated, with rapid and sustained decreases in biomarkers of muscle damage.

Investigational Agent EDG-5506 Shows Promising 2-Year Data in Becker Muscular Dystrophy

The head of neurosciences at the Jane and John Justin Neurosciences Center of Cook Children’s Medical Center provided commentary on the need to properly diagnose Lennox-Gastaut syndrome and the negative downstream impacts of misdiagnosis or underdiagnosing patients.

NeuroVoices: Scott Perry, MD, on the Intricacies and Value of Diagnosing Lennox-Gastaut Syndrome

, has been with the team since October 2019. Follow him on Twitter 

Lauren Seidman, a second-year medical student at NYU Langone’s Grossman School of Medicine, provided perspective on a poster at AAN 2024 highlighting the use of binocular visual function testing in Alzheimer disease.

Understanding the Clinical Utility of Low-Contrast Letter Acuity and RAN Tasks in Alzheimer Disease

Director, Center for Multiple Sclerosis and Autoimmune Neurology, Mayo Clinic 

The director of the Mayo Clinic Center for Multiple Sclerosis and Autoimmune Neurology discussed the safety of ravulizumab and the ways to avoid risks of meningococcal infection. [WATCH TIME: 3 minutes]

Safety Considerations for Ravulizumab in NMOSD: Sean Pittock, MD

Mark Bain, MD, a neurosurgeon at Cleveland Clinic’s Cerebrovascular Center, provided commentary on the ENRICH trial, a positive study of minimally invasive removal of intracerebral hemorrhage.

First Successful Trial in Intracerebral Hemorrhage: Lessons From ENRICH

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Cure SMA

SAP Partners

Episode 1: Overview of Telehealth in Clinical Practice and Patient Options

Episode 2: How Telehealth Can Improve Care for Patients With SMA

Episode 3: Utilizing Telehealth to Conduct Multidisciplinary Visits in SMA Care

Episode 4: The Limitations of Telehealth for Treating SMA

Episode 5: The COVID-19 Pandemic's Effect on Telehealth Use for SMA

Episode 6: Easing the Process of Learning to Use, Incorporate Telehealth in Practice

Episode 7: Prepping Patients With SMA and Their Families Prior to Telehealth Visits

Episode 8: Proposed Solutions to the Limitations of Telehealth

Episode 9: Maximizing Patient Engagement During Telehealth Visits

Episode 10: How Telehealth Provides Insight, Perspective on At-Home Challenges

Episode 11: Resources Available for Patients With SMA 

Cure SMA is dedicated to the treatment and care of spinal muscular atrophy (SMA). Since 1984, Cure SMA has grown to be the largest network of individuals, families, clinicians, and research scientists working together to advance SMA research, support the full SMA community, and educate the public and professional communities about SMA. The organization has directed and invested in comprehensive research that has shaped the scientific community's understanding of SMA, led to breakthroughs in treatment and care, and provides individuals and families the support they need today. For more information, visit 

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Clinical

Lessons Learned in Telehealth When Implementing Multidisciplinary Care for Patients Affected by SMA