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Patients’ Experience With Foscarbidopa/Foslevodopa CSCI for Treatment of Parkinson Disease

Panelists discuss how patients have experienced continuous subcutaneous infusion therapy from the perspective of medical professionals.

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Patient Experiences with Continuous Subcutaneous Infusion (CSCI)

Continuous subcutaneous infusion (CSCI) represents an important medication delivery route for patients requiring ongoing symptom management, particularly in palliative care settings. The following summary highlights key aspects of patient experiences with CSCI:

Patient Comfort and Satisfaction

  • Most patients report good tolerance of CSCI, with minimal discomfort at insertion sites
  • Many patients express relief when transitioning from multiple daily injections to CSCI
  • The less invasive nature compared to IV infusions is frequently cited as beneficial

Common Patient Concerns

  • Initial anxiety about device management and potential technical failures
  • Concerns about site reactions, particularly redness or tenderness
  • Questions regarding mobility limitations and impact on daily activities
  • Worries about public visibility of the infusion device

Site Management Issues

  • Site reactions typically mild but may include erythema, tenderness, or localized swelling
  • Site rotation approximately every 7 days generally prevents significant complications
  • Patients with reduced subcutaneous tissue may report more discomfort

Impact on Quality of Life

  • Improved symptom control often leads to better sleep patterns and daily functioning
  • Reduced need for breakthrough medication correlates with higher patient satisfaction
  • Home-based CSCI management allows many patients to remain in preferred care settings

Caregiver Perspectives

  • Family caregivers generally report positive experiences with proper training
  • Professional caregivers note CSCI as less time-intensive than administering multiple daily injections
  • Clear education materials and access to healthcare support improve confidence in managing CSCI

Recommendations for Practice

  • Thorough pre-initiation patient education significantly improves acceptance
  • Regular assessment of infusion sites and patient comfort optimizes outcomes
  • Individualized approaches to device concealment may improve patient acceptance

Ongoing support and troubleshooting availability reassures patients and caregivers

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