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Amy Shinneman

2022 MDA National Ambassador; Patient with Bethlem myopathy

Articles

Diagnostic Delays and the Importance of the Physician-Patient Relationship: Amy Shinneman

March 15, 2022

The 2022 MDA National Ambassador and patient with Bethlem myopathy spoke to the critical need to improve diagnosis delays in neuromuscular disorders and effective communication between patients and their physicians. [WATCH TIME: 2 minutes]

The Need to Elevate Patient Voices in Neuromuscular Disorders: Amy Shinneman

March 14, 2022

The 2022 MDA National Ambassador and patient with Bethlem myopathy spoke to the importance of including the patient perspective at medical meetings to improve the care paradigm in neuromuscular disorders. [WATCH TIME: 3 minutes]