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Siegel Rare Neuroimmune Association

The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit organization dedicated to the support of children, adolescents, and adults with a spectrum of rare neuroimmune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM). We support individuals living with rare neuroimmune diagnoses and their families, promote awareness to empower patients, families, clinicians and scientists, build a collaborative and dedicated clinical care network and help advance scientific understanding and research.

Additional Resources:

Acute Flaccid Myelitis (AFM) Physician and Consult Support Portal

Acute Flaccid Myelitis (AFM) Resources for Families and Clinicians

No Time For the Moon

Disorder Information Sheets/Resources - Spanish

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Latest from Siegel Rare Neuroimmune Association

Acute Flaccid Myelitis: Drawing Attention Amid the Peak Months

September 06, 2022

Olwen C. Murphy, MBBCh, and Matthew R. Vogt, MD, PhD, discussed the current clinical understanding of AFM and the need to recognize this condition amid the “peak” months of infection: August, September, and October.