|Podcasts|May 20, 2022
Episode 64: Genetics, Advocacy, and Big Data in ALS
Author(s)Matt Hoffman
Mind Moments®, a podcast from NeurologyLive®, brings you an exclusive interview with Matthew B. Harms, MD. [LISTEN TIME: 28 minutes]
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Episode 64 of the NeurologyLive Mind Moments ® podcast is now live! Scroll down to listen or click here to subscribe on your favorite streaming service.
The Mind Moments® podcast features exclusive interviews with leaders in the field discussing the latest research and disease management strategies across the breadth of neurology, including epilepsy, multiple sclerosis, Parkinson disease, dementia, sleep disorders, and more.
Episode 64, "Genetics, Advocacy, and Big Data in ALS," features an exclusive interview with Matthew B. Harms, MD , associate professor of neurology, Columbia University, and medical consultant and care center director, Muscular Dystrophy Association (MDA) . He spoke about the progress that the field has seen in recent years in improving the genetic understanding of amyotrophic lateral sclerosis (ALS) and the role that big data can play in care, as well as shared his perspective on the impact that advocacy efforts have had on these advances.
The stories highlighted in this episode's Neurology News Minute can be found here:
National Institutes of Health Launches Phase 1 Trial to Study Epstein-Barr Virus Vaccine Eisai Completes Rolling BLA Submission for Lecanemab to Treat MCI, Alzheimer Disease FDA Approves Oral Version of Edaravone for ALS
EPISODE BREAKDOWN
2:05 – Major progress in ALS in recent years
4:35 – Key steps forward in genetic testing
7:25 – The understanding of genetics in ALS
9:20 – The role of databases in the care paradigm
11:35 – Neurology News Minute
15:25 – Advocacy's role in the last decade
18:40 – The state of clinical trials for ALS
20:40 – The pipeline of therapies and the future of treatment
24:50 – Importance of continued advocacy for ALS
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