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Videos

A trio of experts from university hospitals discussed a study that aimed to uncover the prevalence and associations of limb swelling in patients with Dravet syndrome in hopes of improving care. [WATCH TIME: 5 minutes]

Investigating Limb Swelling in Patients With Dravet Syndrome: Mandy Alhajj, DO, James Dolbow, DO & Neel Fotedar, MD

Articles

Patients treated with ALZ-801 showed improvements in cognition, reduced brain atrophy, and maintained dementia rating stages.

ALZ-801 Shows Reduction in Relevant Alzheimer Biomarkers, Clearance of Amyloid After 2 Years

An analysis of a phase 3 trial of low sodium oxybate in patients with idiopathic hypersomnia identified a minimal clinically important difference in the visual analog scale for sleep inertia.

Analysis of Low-sodium Oxybate Proposes Minimal Clinically Important Difference in Visual Analog Scale for Sleep Inertia 

The associate professor of neurology at University of California, San Francisco talked about findings from an analysis that assessed the safety of ocrelizumab when administered close to pregnancy. [WATCH TIME: 5 minutes]

Pregnancy Outcomes of Maternal Exposure to Ocrelizumab: Riley Bove, MD

Dermatology resident, University Hospitals.

The executive vice president of research at National MS Society talked about the Dystel Prize which is presented at AAN to a recognized individual who promotes further advancements in understanding and treating MS. [WATCH TIME: 3 minutes]

Recognizing Excellence in Multiple Sclerosis Research, the Dystel Prize: Bruce Bebo, PhD

Director of the Allegheny Multiple Sclerosis Treatment Center at Allegheny General Hospital.

The director of the Allegheny Multiple Sclerosis Treatment Center at Allegheny General Hospital discussed exploring the potential role of BTK inhibitors and advanced MRI techniques to address smoldering multiple sclerosis. [WATCH TIME: 10 minutes]

New Insights into BTK Inhibitors and MRI Techniques for Smoldering MS: Thomas F. Scott, MD

, has been with the team since September 2022. Follow her on Twitter 

The executive vice president and chief research officer of the Muscular Dystrophy Association shared her reaction to the recent FDA approval of givinostat for Duchenne muscular dystrophy.

NeuroVoices: Sharon Hesterlee, PhD, on Givinostat’s Approval for Duchenne Muscular Dystrophy, Future Prospects

NeurologyLive is your direct connection to the latest neurology news and interviews with expert neurologists in multimedia formats.

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Treating NMOSD: What's Next?

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Cure SMA

SAP Partners

Episode 1: Overview of Telehealth in Clinical Practice and Patient Options

Episode 2: How Telehealth Can Improve Care for Patients With SMA

Episode 3: Utilizing Telehealth to Conduct Multidisciplinary Visits in SMA Care

Episode 4: The Limitations of Telehealth for Treating SMA

Episode 5: The COVID-19 Pandemic's Effect on Telehealth Use for SMA

Episode 6: Easing the Process of Learning to Use, Incorporate Telehealth in Practice

Episode 7: Prepping Patients With SMA and Their Families Prior to Telehealth Visits

Episode 8: Proposed Solutions to the Limitations of Telehealth

Episode 9: Maximizing Patient Engagement During Telehealth Visits

Episode 10: How Telehealth Provides Insight, Perspective on At-Home Challenges

Episode 11: Resources Available for Patients With SMA 

Cure SMA is dedicated to the treatment and care of spinal muscular atrophy (SMA). Since 1984, Cure SMA has grown to be the largest network of individuals, families, clinicians, and research scientists working together to advance SMA research, support the full SMA community, and educate the public and professional communities about SMA. The organization has directed and invested in comprehensive research that has shaped the scientific community's understanding of SMA, led to breakthroughs in treatment and care, and provides individuals and families the support they need today. For more information, visit 

SAP Partner

Clinical

Lessons Learned in Telehealth When Implementing Multidisciplinary Care for Patients Affected by SMA