Authors
Latest:
Advancements and Challenges in Genetic Treatments for Neuromuscular Diseases: John W. Day, MD, PhDAhead of the 2024 MDA Conference, the medical advisor and care center director at Muscular Dystrophy Association talked about the track sessions he will be cochairing at the meeting. [WATCH TIME: 5 minutes]
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Role of Advocacy Organizations in Creating Safe Spaces for Rare DisordersA panel of neurology experts detailed the importance that community leadership and creating a positive environment can do for patients with rare neurologic disorders [WATCH TIME: 5 minutes]
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Addressing Social Isolation in Narcolepsy and Idiopathic Hypersomnia: Julie Flygare, JDThe president and CEO at Project Sleep highlighted the need for clinicians to facilitate awareness of patient advocacy resources for those living with narcolepsy or idiopathic hypersomnia. [WATCH TIME: 5 minutes]
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How COViMS Registry Is Clarifying MS COVID-19 Risks: Amber Salter, MPH, PhDThe assistant professor of biostatistics at Washington University in St. Louis discussed what role the COViMS registry can play for the MS community at this stage in the pandemic.
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MS Biomarkers: Overview of Current and Emerging MarkersThis article reviews emerging MRI, OCT, CSF, and blood biomarkers, highlighting their potential roles in improving MS patient management and prognosis.
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Future of Treating Parkinson Disease Psychosis, Overcoming Challenges in Clinical Trials: Aaron Ritter, MDThe director of the Memory & Cognitive Disorders Clinic at Hoag Neuroscience Institute provided perspective on the difficulties with testing agents for Parkinson disease psychosis, and the future outlook of treating the symptom. [WATCH TIME: 4 minutes]
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A Case-Based Overview of Treatment Strategies for Relapse Prevention in MOGAD: Smathorn Thakolwiboon, MDThe assistant professor of neurology at Mayo Clinic College of Medicine and Science outlined a case of myelin oligodendrocyte glycoprotein antibody-associated disease from diagnosis to long-term management. [WATCH TIME: 5 minutes]
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Digital Treatment Approach May Help Reduce Healthcare Burden for MS Fatigue: Federica Picariello, PhDThe postdoctoral researcher and health psychologist at King's College London spoke at ECTRIMS 2022 about the digital approach to treating fatigue in multiple sclerosis and the lack of available measurements. [WATCH TIME: 3 minutes]
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Understanding the Therapeutic Potential of Lomecel-B for Alzheimer Disease: Joshua Hare, MDThe co-founder and chief science officer at Longeveron provided commentary on the therapeutic potential of Lomecel-B, a living cell product in development for patients with Alzheimer disease. [WATCH TIME: 3 minutes]
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Examining Depression and Suicidality in Pediatric Patients With MS: Sarah C. Stoney, MSW, LSWThe social worker in the Pediatric Multiple Sclerosis Clinic at Children's Hospital of Philadelphia talked about depression and suicidality rates in pediatric patients with multiple sclerosis. [WATCH TIME: 5 minutes]
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Unseen Battles: Advocacy and Community in the Face of Myasthenia GravisAnaya, a young woman with myasthenia gravis, discusses her challenges and triumphs living with a rare disease. She shares her personal story of advocacy and community, finding strength in the disease's impact on her independence and identity.
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New Frontiers in the Prevention of Seizures, Gene Therapy in Epilepsy: William Gallentine, DOThe interim chief of pediatric neurology at Stanford Medicine Children’s Health discussed progress in preventing seizures among patients with epilepsy, the potential for gene-targeted therapies, and the importance of localizing where seizures are coming from. [WATCH TIME: 5 minutes]
Latest:
Bidirectionality of the Relaunched Myasthenia Gravis Patient Registry: Paul Strumph, MDThe lead of the Myasthenia Gravis Foundation of America Global Myasthenia Gravis Patient Registry spoke on 2 additional attributes of the patient registry. [WATCH TIME: 3 minutes]
Latest:
Multiple Sclerosis Care During a PandemicJoin Ahmed Obeidat, MD, PhD; Anne Cross, MD; and Gloria von Geldern, MD, for the third program in this series, where they offer insight from neurology specialists on applying lessons learned from the COVID-19 pandemic into clinical practice when managing patients with multiple sclerosis.
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Addressing the Greatest Needs in ALS: Calaneet Balas, MSc, MBAThe president and chief executive officer of The ALS Association provided insight on the most pressing needs for patients with ALS and the organization’s focus going forward. [WATCH TIME: 5 minutes]
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Raising Awareness to Improve Early Diagnosis and Treatment of Duchenne Muscular Dystrophy: Douglas Sproule, MD, MScThe chief medical officer at ML Bio Solutions, an affiliate of BridgeBio, talked about the importance of awareness for neuromuscular diseases such as Duchenne muscular dystrophy and why a timely diagnosis can make a profound difference in a patient’s life. [WATCH TIME: 3 minutes]
Latest:
Key Challenges and Future Directions of Targeting mTOR for Epileptic Disorders: Ghayda Mirzaa, MDThe principal investigator at Seattle Children’s Research Institute described some of the ongoing questions that remain with developing therapeutics that target mTOR signaling pathway in pediatric epilepsy conditions. [WATCH TIME: 3 minutes]
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Advances in Minimally Invasive Diagnostic Tests for Neurodegenerative Diseases: David Shprecher, DO, MSci, FAANThe director of movement disorders at the Banner Sun Health Research Institute talked about making strides in developing minimally invasive tests and imaging ligands for neurodegenerative diseases, such as Parkinson disease. [WATCH TIME: 2 minutes]
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Christian Meisel, MD, PhD: Treatment Landscape for Seizure Forecasting DevicesThe neurologist from Universitätsmedizin Berlin and Berlin Institute of Health provided his insight on the reasons for the limited number of FDA-approved seizure forecasting devices.
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Addressing the Current State of Care, Pipeline in NMOSD: Melanie Truong-Le, DO, ODThe neuro-ophthalmologist at UT Southwestern further discussed the high cost of treatment for patients with neuromyelitis optica spectrum disorder and the need to improve access to care.
Latest:
The Science of Sleep Health and Romantic Relationships: Wendy Troxel, PhDFor Valentine’s Day, the senior behavioral scientist at the RAND Corporation talked about the significance of sleep health and romantic relationships [WATCH TIME: 5 minutes]
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The Role of Aging in Multiple Sclerosis CareExperts discussed how aging impacts multiple sclerosis management, treatment decisions, and overall patient health. [WATCH TIME: 5 minutes]
Latest:
Looking at the Importance of Family-Centered Care Approaches in Pediatric Sleep MedicineFunke Afolabi-Brown, MD, FAASM, chief executive officer of Restful Sleep MD, discussed the potential role of family dynamics and individualized planning in the effective management of pediatric sleep disorders.
Latest:
Transforming the Landscape of Parkinson Disease Care Through Patient-Centric FocusMichael Soileau, MD, FAAN, talked about a panel of specialists who discussed the evolution and multidisciplinary treatment of Parkinson disease, emphasizing patient-centered care and advanced therapeutic options.
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Video: Dyskinesia and Patient Communication in Parkinson DiseasePanelists discuss how early recognition of dyskinesia symptoms, ongoing patient-clinician communication, and individualized treatment strategies are key to effectively managing Parkinson disease and improving patients’ quality of life.
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AUPN Leading Edge Episode 2: So You Want to Be a Dean? Pros, Cons, Joys and TribulationsAUPN Leading Edge Episode 2 features Clifton Gooch, MD, and Charles Lockwood, MD, who explore making the leap from chair to dean. [LISTEN TIME: 25 minutes]
Latest:
New Horizons in Multiple SclerosisExperts share insights on the latest innovations in multiple sclerosis research, in highlights from a recent State of the Science SummitTM, presented by Neurology Live®.
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AUPN 2022 Spring Chairs Session: Simulations for Training in NeurologyDavid G. Standaert, MD, PhD; Wolfgang Muhlhofer, MD; and Latisha Sharma, MD, share their experience in applying simulation-based learning in Neurology and will discuss the current state and future potential of this approach. [WATCH TIME: 1 hour, 25 minutes]
Latest:
Insights on Seizure Therapy and Future Plans in Epilepsy Research: Iryna Leunikava, MScThe European evidence generation strategy lead for epilepsy and rare syndromes at UCB described some details about further epilepsy research and other explorations in the next few years. [WATCH TIME: 3 minutes]
