“We want to help other centers understand where their benchmark should be and give them strategies to improve as well.”

At the 73rd annual meeting of the American Epilepsy Society (AES), Zachary Grinspan, MD, MS, director of the Pediatric Epilepsy Program at Weill Cornell Medicine, and colleagues reported results from a study that examined the rates of patients with infantile spasms who received recommended care.

Grinspan and colleagues utilized the Pediatric Epilepsy Learning Healthcare System (PELHS), a consortium of pediatric epilepsy centers that accumulate health data, to better understand and improve upon care standards. Grinspan suggested that education efforts from advocacy groups and professional organizations can help to increase compliance with first-line therapy recommendations, ultimately better defining recommended care.

In an Interview with NeurologyLive, Grinspan discussed the state of recommended care and what necessary steps the epilepsy community can take towards achieving that 95% compliance rate.