Multidisciplinary Care and Long-Term Planning for Duchenne Muscular Dystrophy

Learn how DMD clinics coordinate neurology, cardio, pulm, rehab and mental health—without overwhelming visits—using nurse coordinators and team huddles.

A teen with Duchenne shows how exon-skipping and steroids shape care, while clinicians stress realistic expectations amid varied progression.

Clinicians weigh safety, dosing, and combo therapies in Duchenne, balancing infusion burden, ethics, and gene-transfer risks before decline.

Duchenne care now reaches adulthood—discover when to plan transition, boost teen independence, and find adult clinics that support lifelong needs.

See how care coordinators sync cardiology, pulmonology and neuromuscular visits so Duchenne teens move to adult care without gaps.

Coordinated Duchenne care transitions align cardiology, pulmonary and neuromuscular handoffs, protecting families from risky gaps after 18.