Cure CMD

Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters, we have made a significant impact in the lives of those living with CMD:

• Provided funding for $3+ million in research grants
• Launched two clinical trials
• Established and expanded the Congenital Muscle Disease International Registry (cmdir.org) to 3,000+ affected registrants worldwide
• Host a biennial Scientific & Family Conference with hundreds of stakeholders in attendance
• Created 300+ hours of videos content to educate and advocate
• Prioritized the voice of the affected individual, growing our community by 300% in the last three years

Connect with us: