Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters, we have made a significant impact in the lives of those living with CMD:
NeuroVoices: Rachel Alvarez on Identifying Key Treatment Needs for Congenital Muscular DystrophiesFebruary 1st 2023
The executive direct of Cure CMD discussed the state of care for patients with congenital muscular dystrophies, the need for new treatments, and the patience with gene therapies.
Mission Behind Cure CMD’s Research Roundtable, Efforts Around CMDs: Rachel AlvarezJanuary 28th 2023
The executive director of Cure CMD discussed efforts being done to bring the stakeholder community together and improve the care for patients with congenital muscular dystrophies. [WATCH TIME: 4 minutes]
NeuroVoices: Rachel Alvarez on Cure CMD’s Goal to Bring Patients and Clinicians TogetherJanuary 18th 2023
The executive director of Cure CMD provided perspective on a new 10-month program that aims to align patient and clinician perspectives on certain rare neuromuscular disorders.
Cure CMD: Benefits of the Biennial SciFam ConferenceJuly 6th 2022
Rachel Alvarez and Gustavo Dziewczapolski, PhD, of Cure CMD spoke about the benefits of attending the biennial Scientific & Family Conference to learn more about congenital muscle diseases and interact with the patient community.