Cure CMD

Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters, we have made a significant impact in the lives of those living with CMD:

  • Provided funding for $3+ million in research grants
  • Launched two clinical trials
  • Established and expanded the Congenital Muscle Disease International Registry ( to 3,000+ affected registrants worldwide
  • Host a biennial Scientific & Family Conference with hundreds of stakeholders in attendance
  • Created 300+ hours of videos content to educate and advocate
  • Prioritized the voice of the affected individual, growing our community by 300% in the last three years

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