Dravet Syndrome and Caregiver Burdens

Key Takeaways

• Caregivers manage frequent, severe seizures and complex treatment regimens, impacting their emotional and psychological well-being.
• Accessing appropriate healthcare resources and support systems poses significant challenges for caregivers.
• Effective communication requires empathy, active listening, and providing clear, concise information to caregivers.
• Acknowledging caregivers' experiences and offering practical solutions ensures they feel supported and understood.