Understanding and Developing a Seizure Action Plan

The inaugural Seizure Action Plan (SAP) Awareness Week, February 8 to 15, 2021, is an initiative to raise awareness about the importance of developing SAPs for patients with epilepsy and their caregivers. Organized by the SAP Coalition, which is a collaboration of the Dravet Syndrome Foundation, the Lennox-Gastaut Syndrome (LGS) Foundation, and the Tuberous Sclerosis Alliance, the initiative features a social media campaign and new website designed to highlight the need for these plans, especially should an emergency occur.

In efforts to continue these ongoing conversations, NeurologyLive hosted a roundtable discussion with multiple notable leaders within the epilepsy community. Scott Perry, MD, co-director, Jane and John Justin Neurosciences Center, Cook Children’s Hospital; Orrin Devinksy, MD, director, Comprehensive Epilepsy Center, NYU Langone; and Tracy Salazar, PhD, executive director, LGS Foundation, all participated in the multi-segment conversation.

In this first segment, the 3 rare epilepsy experts give their perspectives on the importance of SAPs and the benefits physicians can derive from developing their own.