Dravet Syndrome: Transition of Care Into Adulthood
Joseph Sullivan, MD, and Elaine C. Wirrell, discuss the transition of care into adulthood of patients with Dravet syndrome.
Managing Expectations for Patients With Dravet Syndrome
Key opinion leaders discuss managing patient expectations regarding clinical trials for Dravet syndrome treatment.
Therapies in Development for Dravet Syndrome
A discussion of new developments for the treatment of Dravet syndrome beyond seizure control including gene editing and therapy.
Dravet Syndrome: Fenfluramine and the Impact on Consensus Guidelines
The impact of new drug approvals on the consensus guidelines for the treatment of Dravet syndrome.
Therapies for Children and Adults with Dravet Syndrome
The panelists discuss the possibility of treating Dravet syndrome in older children and adults and the effects if the therapies were effective.
Looking to the Future of Dravet Syndrome Therapies
The panel discusses future gene therapies in development for Dravet syndrome.
Recent Approval of Fenfluramine Oral Solution
Joseph Sullivan, MD, provides an overview of the recent approval of fenfluramine oral solution for the treatment of Dravet syndrome.
Dravet Syndrome: Cannabidiol Oral Solution
Elaine C. Wirrell, MD, provides an overview of cannabidiol oral solution for treatment of seizures associated with Dravet syndrome.
Dravet Syndrome: Management of Treatment
Joseph Sullivan, MD, and Elaine C. Wirrell, MD, discuss the management of seizures for Dravet syndrome with different approved therapies.
Treatment Goals of Dravet Syndrome
Experts discuss the goals of treatment of patients with Dravet syndrome regarding seizure freedom and seizure burden.
Transitioning Into Adulthood With Dravet Syndrome
Elaine Wirrell, MD, reviews the transition of care into adulthood of patients with Dravet syndrome and how this transition can affect the patient, caregiver, and care provider.
Impact of Dravet Syndrome on the Caregiver and Family
The panel discusses the impact on the family, siblings, or caregivers of patients with Dravet syndrome.
Family Planning and Behavior Issues Associated with Dravet Syndrome
Considerations of genetic testing regarding family planning as well as behavioral issues associated with Dravet syndrome.
Dravet Syndrome: SUDEP and Increase Risk of Premature Mortality
Elaine C. Wirrell, MD, explains the increased risk of sudden unexpected death in epilepsy (SUDEP) in patients with Dravet syndrome and how to talk about it with caregivers and families.
Fenfluramine as a Treatment Option for Dravet Syndrome
Elaine Wirrell, MD, provides background on fenfluramine, results from 2 clinical trials, and compares it to other treatment therapies.
Cannabidiol as a Treatment Option for Dravet Syndrome
Elizabeth Thiele, MD, PhD, reviews cannabidiol oral solution as treatment of seizures associated with Dravet syndrome and the safety profile and dosing associated with it.
Early Diagnosis and Seizure Triggers of Dravet Syndrome
The importance of early diagnosis of Dravet syndrome as well as seizure triggers and comorbidities are discussed by key opinion leaders in the field.
Presentation of Dravet Syndrome
Joseph Sullivan, MD, and Elaine C. Wirrell, MD, discuss the presentation of Dravet syndrome in children.
Treatment Therapies for Dravet Syndrome
A panel discussion on the North American Consensus statement on treating Dravet syndrome and the approved therapies like clobazam, ketogenic diets, and other first- and second-line therapies.
Managing Patient/Parent Expectations in Dravet
A discussion on having conversations with the parents of patients with Dravet syndrome with regards to adjustments to therapy and managing their expectations.
Treatment Variability for Dravet Syndrome
A panel of experts discuss treatment goals for patients with Dravet syndrome and how to convey the variability of treatment to the parents of these patients.
Importance of Early Diagnosis for Dravet Syndrome
Trevor J. Resnick, MD, and Elaine Wirrell, MD, explain why the early diagnosis of Dravet syndrome is important, which patient profiles should be noted for ordering genetic testing, and what to do with those results.
Dravet Syndrome Overview
Elizabeth Thiele, MD, PhD, and Elaine Wirrell, MD, provide an overview of Dravet syndrome and the seizure triggers in pediatric patients.
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