NeurologyLive® Friday 5 — March 27, 2026

Welcome to NeurologyLive^®'s Friday 5! Every week, the staff compiles 5 highlights of NeurologyLive's widespread coverage in neurology, ranging from newsworthy study findings and FDA action to expert interviews and peer-to-peer panel discussions.

Click the read more buttons for more details and information about each highlight.

1: Exploring One-Time Gene Regulation Therapy EXT101 in Dravet Syndrome: The Phase 1/2 POLARIS Program

This month’s exclusive NeurologyLive Clinical Trial in Focus spotlight is the phase 1/2 POLARIS program of EXT101 (Encoded Therapeutics), an adeno-associated virus (AAV)-mediated candidate for gene regulation therapy, for the treatment of SCN1A+ Dravet syndrome.

2: Giving Voice to the Patient Experience in Neuromuscular Disease: Lily Sander

In an interview at the 2026 MDA Conference, Lily Sander, 2026 MDA National Ambassador, discussed the importance of connecting patients’ experiences with scientific understanding in the field of neuromuscular disease. [WATCH TIME: 2 minutes]

3: How Can We Grow Awareness of Epilepsy and the DEEs?

In honor of Purple Day^®, held on March 26, 2026, Mary Anne Meskis, chief executive officer of the Dravet Syndrome Foundation, highlighted ongoing efforts and future steps to raise awareness for rare epileptic disorders.

4: NeuroVoices: Aravindhan Veerapandiyan, MD; Gabriel Brooks, MD, on Unpacking the SGT-003 Phase 1/2 Biomarker Data in Duchenne

In our latest NeuroVoices Q&A, Aravindhan Veerapandiyan, MD; Gabriel Brooks, MD, discussed new biomarker data from a phase 1/2 study of the gene therapy SGT-003 in boys living with Duchenne muscular dystrophy presented at the 2026 MDA Conference.

5: Using the Patient Voice to Guide Clinical Research in Charcot-Marie-Tooth Disease: Allison Moore

In an interview at the 2026 MDA Conference, Allison Moore, founder and CEO at the Hereditary Neuropathy Foundation discussed how learning about patient experiences has influenced research in Charcot-Marie-Tooth disease. [WATCH TIME: 5 minutes]

Click here to view our latest video interview shorts with neurology experts.