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TSC Alliance

Latest from TSC Alliance


TSC Alliance’s Growth Has Led to Improved Lives and Progress Toward a Cure

May 26, 2022

In light of Tuberous Sclerosis Complex (TSC) Awareness Month throughout May, Kari Rosbeck, president and CEO, TSC Alliance, highlights what has been done to advance TSC research and how the organization is improving the diagnosis journey, access to care, and support for families.

Rare Disease Day: Updates on Rare Neurological Diseases

February 28, 2022

In recognition of Rare Disease Day, the NeurologyLive® team offered an extensive update on the state of care and treatment for a wide range of rare neurological diseases, including Kleine-Levin syndrome, amyotrophic lateral sclerosis, cerebral palsy, Lennox-Gastaut syndrome, and more.

Preventing TSC By Treating at the Earliest Stage: Darcy Krueger, MD, PhD

January 03, 2022

The director of the Tuberous Sclerosis Clinic at Cincinnati Children’s discussed the thought behind STOPS2, a trial aimed at preventing or delaying seizure onset in tuberous sclerosis complex. [WATCH TIME: 3 minutes]