The pediatric epilepsy specialist at Weill Cornell Medicine spoke about how the Pediatric Epilepsy Learning Healthcare System has helped with gathering data at the 2022 AES Conference. [WATCH TIME: 6 minutes]
WATCH TIME: 6 minutes
“We want to figure out a way for the work that we do every day in clinical care, to take that information, and aggregate it across our centers across the United States. Then, learn from it and do research, quality improvement, surveillance and epidemiology, health services, etc., so that we can optimize care for this vulnerable population of kids.”
In the first years of life, the risk of epilepsy is at its height, with drug-resistant epilepsy more common at this stage than in older adults. Establishing early recognition and resolution for seizures is critical for the development of these children, and If not taken care of, the continuation of uncontrolled seizures can lead to developmental stagnation or declines in the brain.
At the 2022 American Epilepsy Society Annual Meeting, held December 2 to 6, in Nashville, Tennessee, Zachary Grinspan, MD, MS, gave a talk in about answering pertinent questions within the space with large-scale data using the Pediatric Epilepsy Learning Healthcare System (PELHS).1 In the session, he expanded on the most recent research with early onset epilepsy and highlighted the exploration of methods to evaluate therapeutic efficacy. The main goal of the session was to encourage further investigations assessing how to bridge gaps of scientific models in pediatric epilepsy.
Grinspan, epilepsy specialist at Weill Cornell Medicine, recently had an interview with NeurologyLive® at the 2022 AES meeting and spoke more about the knowledge gaps that are present in early life epilepsy. He also talked on the PELHS and how that data has helped with learning more about the patients as well as using that information to provide high quality clinical care.