Opinion
Video
Recognition of Off Episodes in Parkinson Disease
Panelists discuss how understanding and communication of off episodes for patients with Parkinson disease varies widely in clinical settings, often hindering optimal symptom management.
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Patient Understanding and Discussion of Off Episodes
- Patients often struggle to recognize, characterize, and report off episodes
- Terminology confusion: Patients may use different language to describe symptoms
- Many patients accept worsening symptoms as inevitable disease progression
- Underreporting due to time constraints during clinical visits
- Patient education gaps regarding the relationship between medication timing and symptom fluctuations
- Symptom diaries and rating scales improve identification but are inconsistently used
- Technology-based monitoring offers promise for more objective assessment
- Cultural and psychological factors influence symptom reporting and help-seeking behavior
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