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Videos

Experts noted that the Lennox-Gastaut syndrome Foundation is a welcoming platform for collaboration, research advancement, and career development in the field. [WATCH TIME: 3 minutes] 

2025 LGS Meeting Reflections and Engagement Opportunities in Research

Articles

New findings presented at the 2025 International Epilepsy Conference indicated that cenobamate may provide benefits beyond seizure control in patients with uncontrolled focal-onset seizures.

Cenobamate Data Shows Seizure Reduction, Lower Health Care Use, and Potential SUDEP Risk Reduction

Experts discussed strategies to improve LGS clinical trial design, better understand comorbidities in rare epilepsies, and foster collaboration across stakeholders. [WATCH TIME: 5 minutes]

Enhancing Design of LGS Clinical Trials and Patient Care in Rare Epilepsies

New trial data reveals claseprubart shows significant efficacy in treating generalized myasthenia gravis, paving the way for potential FDA approval.

Claseprubart Heads to Phase 3 Study of Myasthenia Gravis Following Positive MaGic Trial

Co-director, Jane and John Justin Neurosciences Center, Cook Children’s Hospital

Experts discussed gaps in LGS research, including biomarker development, sleep assessment, and early intervention strategies to improve diagnosis and outcomes for patients. [WATCH TIME: 6 minutes]

Research Priorities and Clinical Insights in Lennox-Gastaut Syndrome

Experts underscored that stakeholder collaboration, including clinicians, caregivers, and industry partners, can play a critical role in advancing understanding and management of LGS. [WATCH TIME: 3 minutes]

Enhancing Clinical Management of LGS Through Collaboration With Stakeholders

NeurologyLive is your direct connection to the latest neurology news and interviews with expert neurologists in multimedia formats.

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Siegel Rare Neuroimmune Association

Mayo Clinic

SAP Partners

Episode 1: Clinical Presentation of Neuroimmune Disorders

Episode 2: Accurately Ensuring Diagnosis With Thorough Clinical Evaluation and History

Episode 3: Attention to Detail With Biomarkers in Rare Neuroimmune Disorders

Episode 4: Understanding the Need for Additional Help, Emergency Care With Neuroimmune Disorders

Episode 5: Avoiding and Troubleshooting Misdiagnosis of Rare Neuroimmune Disorders

The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit organization dedicated to the support of children, adolescents, and adults with a spectrum of rare neuroimmune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM). We support individuals living with rare neuroimmune diagnoses and their families, promote awareness to empower patients, families, clinicians and scientists, build a collaborative and dedicated clinical care network and help advance scientific understanding and research.

Acute Flaccid Myelitis (AFM) Physician and Consult Support Portal

Acute Flaccid Myelitis (AFM) Resources for Families and Clinicians

Disorder Information Sheets/Resources - Spanish

SAP Partner

Experts such as Brenda Banwell, MD; Sean Pittock, MD; and Michael Levy, MD, PhD, cover topics related to differences in rare neuroimmune disorders, how they're approached and treated.

Clinical

EMD-22-NRD0193 - /clinical/multiple-sclerosis

SRNA Roundtable Discussion: Diagnosis, Presentation, and Treatment Decision Differences Among Rare Neuroimmune Disorders

SRNA Roundtable Discussion: Diagnosis, Presentation, and Treatment Decision Differences Among Rare Neuroimmune Disorders

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