Opinion|Videos|June 17, 2024

Transitions of Care: Moving Spinal Muscular Atrophy Patients from Pediatric/Adolescent Care to Adult Clinics

Author(s)Lauren Elman, MD
Arun S. Varadhachary, MD, PhD

Key opinion leaders (KOLs) address the challenges and obstacles associated with transitioning patients from pediatric to adult care as they age out of the pediatric system, offering valuable insights and strategies for successfully navigating this process.

As we do a better job at treating the underlying disease, it is becoming increasingly important in how adults with SMA will receive their care.In some institutions, adults can continue to receive care from the provider who has been caring for them for their entire lives, but in others this is not feasible.
1. At what age do you typically begin discussions of transition of care?
2. What do you perceive as some of the barriers to transitioning care?

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