Dravet Syndrome Foundation

Latest from Dravet Syndrome Foundation


Rare Disease Day: Updates on Rare Neurological Diseases

February 28, 2022

In recognition of Rare Disease Day, the NeurologyLive® team offered an extensive update on the state of care and treatment for a wide range of rare neurological diseases, including Kleine-Levin syndrome, amyotrophic lateral sclerosis, cerebral palsy, Lennox-Gastaut syndrome, and more.

Shifting to a Holistic Approach to Treat Developmental Epileptic Encephalopathies

December 13, 2021

The medical director of the Epilepsy program at the University of Toronto discussed her presentation at AES 2021 regarding the need to change how clinicians view and treat patients with developmental epileptic encephalopathies.

Vaccination and Seizure Risk in Dravet Syndrome: Veronica Hood, PhD, MS

December 08, 2021

The scientific director at the Dravet Syndrome Foundation commented on the concern associated with vaccination in this patient population, noting that investigators have not observed an exacerbated risk profile with the COVID-19 vaccines. [WATCH TIME: 2 minutes]