Videos

Experts featured in this series.

In the final episode, 'Multidisciplinary Approaches to Long-Term Narcolepsy Care,' the panelists explore the multidisciplinary challenges inherent in managing narcolepsy over the long term, opening with a candid discussion of how fragmented healthcare systems and limited communication infrastructure make true care coordination difficult. In practice, the burden of bridging different care teams often falls on the patient, with the expert panel encouraging patients to keep all providers informed of treatment changes to avoid conflicting approaches.

Experts featured in this series.

This episode, titled 'Optimizing Narcolepsy Treatment Through Polypharmacy,' features panelists discussing the role of polypharmacy in narcolepsy treatment, challenging the notion that a single agent is sufficient for most patients. While research suggests roughly 60% of narcolepsy patients are on multiple medications, the expert panel notes that in their own clinical practices the rate is considerably higher, reflecting a more aggressive pursuit of optimal outcomes. The anticipated arrival of orexin receptor agonists is acknowledged as potentially transformative, though the expert panel stops short of assuming any single agent will address the full spectrum of narcolepsy symptoms.

Experts featured in this series.

In 'Assessing DEA Scheduling and Emerging Therapies in Narcolepsy,' our panel delves into the practical implications of DEA scheduling on narcolepsy treatment decisions, noting that available medications span the scheduling spectrum from unscheduled agents like pitolisant to schedule three oxybates and schedule two stimulants.

An expert featured in this series.

In this discussion, Dr Brenda Wong explores how families can be supported by advocacy organizations after a Duchenne muscular dystrophy diagnosis. She elaborates on how care needs evolve across the lifespan, and how advocacy organizations can help guide multidisciplinary care, treatment decisions, care transitions, and participation in cutting edge DMD research.

Experts featured in this series.

In this episode, 'Narcolepsy Treatment Considerations in Pediatric Patients', the experts explore the pharmacologic treatment of narcolepsy in pediatric patients, beginning with a review of FDA-approved options for children. The expert panel notes that the oxybate class, including sodium oxybate, low-sodium oxybate, and once-nightly oxybate, carries approval for excessive daytime sleepiness and cataplexy in patients seven and older, while pitolisant is approved for ages six and up for both indications, including a recently added cataplexy indication. The expert panel clarifies that traditional stimulants and solriamfetol have not been specifically studied or approved for cataplexy treatment.